Commentary on Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: A qualitative study. Autism, 2023.
Implications for practice and research:
Implementing waiting-list interventions, offering regular updates on queue position and estimated wait times, and providing information about support services can alleviate the uncertainty of prolonged waits and mitigate dropouts among individuals with learning disabilities and comorbid mental conditions.
To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The objective of this study was to explore the role that Autistic identity, sensory processing and camouflaging behaviours have on eating disorder symptomology in Autistic adults. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study asks how autistic people experience menopause and how they can better access services, support and information; autistic Community Research Associates played an important role in each stage of the research. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This paper presents two real-life examples of attempted coproduction with a group of men with learning disabilities in England. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This paper aims to detail the process of developing a risk stratification tool to identify those individuals who are higher risk of premature mortality. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The purpose of this study is to examine the continuing adherence to the stopping over-medication of people with intellectual disability and/or autism guidelines for a cohort of outpatients seen in the outpatients’ clinics in the two teams who participated in this study to review the trend of psychotropic prescribing with a prescription indication along with the utilisation of non-pharmacological interventions. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This preliminary study aims to examine the use of a co-designed immersive virtual reality intervention programme in improving access to health care for people with intellectual disability. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We wanted to find out what support and information is available to girls and women with learning disabilities about periods (also called ‘menstruation’) over a lifetime. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The aim of this retrospective study was to investigate the impact of the ED approach on the prescription of psychotropic medication during inpatient psychiatric treatment. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We invited participants ...to take part in the current study on sleep–wake rhythm, mood and behaviour in older adults with IDs 1 year after installing environmental dynamic light installations in the common living rooms of six group homes. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The main objective of this study was to evaluate gait parameters in people with intellectual disability (ID) and without intellectual disability (WID) in two different walking conditions [single task vs. dual task (DT)]. A secondary aim was to evaluate the dual-task cost (DTC) that the DT causes in each group. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The purpose of this quasi-experimental study was to evaluate the changes in gait deviations and walking speed in adults with DS after a DS-specific exercise programme. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We tried to find out why some older adults with intellectual disability may have poor bone health and are at risk of breaking bones. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Sometimes women with learning disabilities do not go for these checks, and we wanted to find out why. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We studied three separate autistic samples, each of which differed in how they were diagnosed and how they were recruited. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We asked 33 autistic adults from two industry-led employment programmes about their experiences in the programmes. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Little is known about the parenting experiences of autistic mothers, especially those who have daughters who are not on the autism spectrum. In this study, we interviewed seven autistic mothers who have raised or are currently raising non-autistic teenage daughters. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We co-produced an online self-guided self-compassion program based on evidence-based self-compassion practices for autistic adults called the Self-compassion Program for Autistic Adults. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We examined the use of person- and identity-first language (PFL, IFL) in scholarly writing about autism by reviewing 12,962 journal abstracts from 11 autism research journals (mostly covering the years 2001–2022). To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study uses a qualitative approach to investigate the healthcare experiences of autistic adults. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study aimed to analyse the blood lipid profile of a large DS cohort to establish a baseline for evaluating health risk parameters. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This review focuses on community and in-patient approaches to meeting a complexity of need. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We aim to determine the effectiveness of lifestyle modification interventions and their components in targeting health risk behaviours in adults with IDs. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study aimed to understand how lifestyle modification interventions for adults with intellectual disabilities work, for whom they work and in what circumstances. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Individuals with intellectual disabilities (IDs) often present deficiencies in motor, balance and postural control. On the other hand, the practice of physical activity and dance usually reduces these deficiencies. Therefore, in this study, we aimed to compare the control of the centre of pressure (COP) in people with Down syndrome (DS) or other causes of ID in relation to people without disabilities and to observe the influence of vision and the practice of dance. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning disabilities. As part of our ethics applications to access National Health Service study sites for fieldwork, we worked together to write guiding principles for co-producing research ethics with researchers with learning disabilities. In this paper, we introduce these Participatory Ethics Good Practice Guidelines and reflect on our collaboration. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We piloted a person-centred method to enable one young person's (Dominic) voice to be included in his transition to adult services. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Here, we present the first revisions of the International Classification of Functioning, Disability and Health Core Sets for autism, based on research, development results, and community feedback. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
...we explored the gender dysphoria experiences of 15 Japanese autistic transgender adults... To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
A meta-ethnographic approach was used to review the existing research on autistic adults’ experiences of accessing healthcare. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study investigated the experiences of 39 autistic adults who participated in an autism-specific online self-compassion program. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
The broad autism phenotype refers to a group of behaviors related to autism spectrum disorder, but that appear to a lesser extent. Its assessment has been performed through outdated broad autism phenotype/autism spectrum disorder definitions and tests. To address this problem, this study presents the development of a new test, the Broad Autism Phenotype–International Test... To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study suggested that social media can provide important information about autism to autistic people. We interviewed 12 autistic adults (aged 18–49 years) and talked to them about the use of social media to find both general information and content specifically about autism, autism identity and online autistic communities. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
In this preregistered study, we developed a task to investigate whether autistic adolescents and adults with limited or no phrase speech (N = 31) have learned English orthographic conventions. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
For this review, autistic and non-autistic researchers looked at research on the experience of receiving a diagnosis of autism spectrum disorder as an adult. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This article explains the importance of using a systematic approach to health assessment and describes various elements of communication involved in this process. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study included people with intellectual disability who had ever had a PEG inserted and who presented to the specialist Speech and Language Therapy team in one Greater Manchester borough... To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
People with intellectual disability die from some illnesses that could be avoided. This is a bigger problem in people with intellectual disability than in people without intellectual disability. We searched for evidence about what we could do to prevent these illnesses. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We aimed to investigate the perspectives of clients and their carers on clients’ treatments with psychotropic drugs. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Special attention is required when considering any educational intervention aimed at its promotion and development. Our objective is to conduct an umbrella review of systematic reviews that gather evidence from relationships and sex education programmes tailored for individuals with intellectual disabilities. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
What has happened to people's health and healthcare as we move beyond the pandemic? To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
In this two-part study, electronic medical records (EMRs) were leveraged to examine co-occurring health conditions... To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
In a published systematic review, we reported evidence about the process of deprescribing psychotropic medicines... To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
This study explored the accuracy of two commonly used autism screening surveys for adults: the RAADS-R and the RAADS-14. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
We wanted to find out which topics autistic people in Scotland want to see research on. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
In the past 40 years, accumulating evidence suggested that autistic individuals are at an increased risk of suicidal thoughts and behaviors. This study examined the occurrence of various potential risk factors for lifetime suicidal behavior and suicidal thoughts in the past month in a Dutch cohort (Netherlands Autism Register) of autistic individuals... To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
‘Who, When, How to Share’ is a new programme that aims to support autistic adults in making decisions around sharing their autistic identity with others. The programme involves working through a self-help guide independently over 3 weeks with optional peer support. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
Prospective memory helps us to remember to perform tasks in the future... The goal of this study was to determine time- and event-based prospective memory in autistic adults across the life span. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.
In our study, we looked at experiences of people currently seeking an autism diagnosis in the UK. To read the full article, choose Open Athens “Institutional Login” and search for “Midlands Partnership”.