The aim of this prospective cohort study was to evaluate the impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy (CP). Short-Form 36 version II was used to measure quality of life in carers of 57 Caucasian children with CP (28 females, 29 males; median age 4y 4mo, range 5mo to 17y 3mo) six and 12 months after insertion of a gastrostomy tube. Responses were calibrated against a normative dataset (Oxford Healthy Life Survey III). Six months after gastrostomy feeding was started, a substantial rise in mean domain scores for mental health, role limitations due to emotional problems, physical functioning, social functioning, and energy/vitality were observed. At 12 months after gastrostomy placement, carers reported significant improvements in social functioning, mental health, energy/vitality (mean increase >9.8 points;p<0.03), and in general health perception (mean increase 6.35 points;p=0.045) compared with results at baseline. Moreover, the values obtained for these domains at 12 months were not significantly different from the normal reference standard. Carers reported a significant reduction in feeding times, increased ease of drug administration, and reduced concern about their child's nutritional status. This study has demonstrated a significant, measurable improvement in the quality of life of carers after insertion of a gastrostomy feeding tube.
%0 Journal Article
%1 Sullivan2004
%A Sullivan, Peter B
%A Juszczak, Edmund
%A Bachlet, Allison M E
%A Thomas, Adrian G
%A Lambert, Bridget
%A Vernon-Roberts, Angharad
%A Grant, Hugh W
%A Eltumi, Muftah
%A Alder, Nicola
%A Jenkinson, Crispin
%D 2004
%J Dev Med Child Neurol
%K Adolescent; Adult; Attitude of Health Personnel; Caregivers; Cerebral Palsy; Child; Child, Preschool; Disability Evaluation; Disabled Children; Female; Follow-Up Studies; Gastrostomy; Status; Humans; Infant; Male; Mental Disorders; Nutritional Parenteral Nutrition; Patient Care Team; Prospective Quality Life; Questionnaires
%N 12
%P 796--800
%T Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy.
%V 46
%X The aim of this prospective cohort study was to evaluate the impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy (CP). Short-Form 36 version II was used to measure quality of life in carers of 57 Caucasian children with CP (28 females, 29 males; median age 4y 4mo, range 5mo to 17y 3mo) six and 12 months after insertion of a gastrostomy tube. Responses were calibrated against a normative dataset (Oxford Healthy Life Survey III). Six months after gastrostomy feeding was started, a substantial rise in mean domain scores for mental health, role limitations due to emotional problems, physical functioning, social functioning, and energy/vitality were observed. At 12 months after gastrostomy placement, carers reported significant improvements in social functioning, mental health, energy/vitality (mean increase >9.8 points;p<0.03), and in general health perception (mean increase 6.35 points;p=0.045) compared with results at baseline. Moreover, the values obtained for these domains at 12 months were not significantly different from the normal reference standard. Carers reported a significant reduction in feeding times, increased ease of drug administration, and reduced concern about their child's nutritional status. This study has demonstrated a significant, measurable improvement in the quality of life of carers after insertion of a gastrostomy feeding tube.
@article{Sullivan2004,
abstract = {The aim of this prospective cohort study was to evaluate the impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy (CP). Short-Form 36 version II was used to measure quality of life in carers of 57 Caucasian children with CP (28 females, 29 males; median age 4y 4mo, range 5mo to 17y 3mo) six and 12 months after insertion of a gastrostomy tube. Responses were calibrated against a normative dataset (Oxford Healthy Life Survey III). Six months after gastrostomy feeding was started, a substantial rise in mean domain scores for mental health, role limitations due to emotional problems, physical functioning, social functioning, and energy/vitality were observed. At 12 months after gastrostomy placement, carers reported significant improvements in social functioning, mental health, energy/vitality (mean increase >9.8 points;p<0.03), and in general health perception (mean increase 6.35 points;p=0.045) compared with results at baseline. Moreover, the values obtained for these domains at 12 months were not significantly different from the normal reference standard. Carers reported a significant reduction in feeding times, increased ease of drug administration, and reduced concern about their child's nutritional status. This study has demonstrated a significant, measurable improvement in the quality of life of carers after insertion of a gastrostomy feeding tube.},
added-at = {2014-07-19T21:36:50.000+0200},
author = {Sullivan, Peter B and Juszczak, Edmund and Bachlet, Allison M E and Thomas, Adrian G and Lambert, Bridget and Vernon-Roberts, Angharad and Grant, Hugh W and Eltumi, Muftah and Alder, Nicola and Jenkinson, Crispin},
biburl = {https://www.bibsonomy.org/bibtex/2a3ede070b174567ea44b23871ef15841/ar0berts},
groups = {public},
interhash = {e0590c2bb9465246cb9a1de0ef9dbe14},
intrahash = {a3ede070b174567ea44b23871ef15841},
journal = {Dev Med Child Neurol},
keywords = {Adolescent; Adult; Attitude of Health Personnel; Caregivers; Cerebral Palsy; Child; Child, Preschool; Disability Evaluation; Disabled Children; Female; Follow-Up Studies; Gastrostomy; Status; Humans; Infant; Male; Mental Disorders; Nutritional Parenteral Nutrition; Patient Care Team; Prospective Quality Life; Questionnaires},
month = Dec,
number = 12,
pages = {796--800},
pmid = {15581151},
timestamp = {2014-07-19T21:36:50.000+0200},
title = {Impact of gastrostomy tube feeding on the quality of life of carers of children with cerebral palsy.},
username = {ar0berts},
volume = 46,
year = 2004
}